ライフサイエンスコーパス: carer

1 antidepressants, in another trial, or had no carer.

2 l would then depend on a single, short-lived carer.

3 health questionnaire between the patient or carer.

4 ly physical health outcomes of being a young carer.

5 opinions and another referring to their main carer.

6 , having undergone radiotherapy, and being a carer.

7 tentially cost-effective means of supporting carers.

8 isms to understand how mentoring may benefit carers.

9 y is an important psychological resource for carers.

10 r 4, 2009, to June 8, 2011, we recruited 260 carers.

11 ructured interviews with patients and family carers.

12 aximum variation sample of 35 patients and 9 carers.

13 r stroke is a major concern for patients and carers.

14 oints of view of psychiatrists, patients and carers.

15 stressful, complex, long-term challenges to carers.

16 s, which were completed by the participants' carers.

17 t system, which masked both participants and carers.

18 d number of falls, or on emotional stress of carers.

19 family support on stroke patients and their carers.

20 g patients and levels of burden in patients' carers.

21 ontribute to the difficulties experienced by carers.

22 o were living at home, and family members or carers.

23 ity of life of both people with dementia and carers.

24 nt morbidity affecting patients and informal carers.

25 people living with dementia (PLWD) and their carers.

26 he gains in quality of life for patients and carers.

27 immobile and dependent on their professional carers.

28 s, and the limited research involving family carers.

29 evaluating the impact of FCP in patients and carers.

30 istic fear of fever expressed by parents and carers.

31 therefore be more acceptable to patients and carers.

32 y of care for people with dementia and their carers.

33 nd validity of the DAS in patients and their carers.

34 planning for people with dementia and their carers.

35 ncern for people with food allergy and their carers.

36 re for people with dementia and their family carers.

37 negotiated responsibility with patients and carers.

38 ntia live at home supported mainly by family carers.

39 h African adolescent cohorts including Young Carers (2010-2012) and Mzantsi Wakho (2014-2017).

40 tive to the short life expectancies of adult carers: a lone mother's offspring are doomed if she dies

41 Education of patients and their carers about the risks associated with, and management o

42 Family carers act flexibly to provide continuity, support and t

43 d a reduced quality of life for patients and carers, adding to health costs and extending disease bur

44 Nurses and carers administering medications.

45 533 male and 641 female cancer patients and carers aged 4-95 (mean 62) years, who accessed the welfa

46 0 (4400-483 000), for their parents or adult carers (aged 20-60 years) is 769 (148-2700), and for old

47 ers have a devastating impact on patient and carer alike.

48 controversial, and the potential benefits of carers' alternation remain unknown.

49 with dementia, and are associated with poor carer and care recipient outcomes.

50 mmunicating and connecting with the patient, Carer and family engagement, Building up a picture of th

51 ed and 14 associations between being a young carer and health were identified (two studies were treat

52 mentia care affects the mental health of the carer and identify interventions that might be useful in

53 START is cost effective with respect to carer and patient outcomes, and National Institute for H

54 raits are associated with and influence both carer and patient outcomes.

55 AIM: To identify patient, carer and professional views on the concept of self-mana

56 idence interval -1.0 to -0.4) for parents or carers and -0.9 (-1.3 to -0.6) for young people.

57 terval -2.5 to -0.6; P=0.002) for parents or carers and -1.9 (-3.0 to -0.8; P<0.001) for young people

58 Eight (16%) of 50 carers and 26 (39%) of 67 controls had a four-fold incre

59 83 patients with ALS, 75 carers and 83 sex-matched, age-matched and education-mat

60 up rates were 91.5% (311/340) for parents or carers and 90.2% (304/337) for young people.

61 es to influenza vaccination differed between carers and a control group, and the relation of the anti

62 In parents/carers and adults, this has significant impact on qualit

63 with over 400 service users, practitioners, carers and advocates from ten European countries at diff

64 Furthermore, as patients, carers and clinical nurse specialists worked together to

65 le with dementia is a priority for patients, carers and clinicians and a policy priority.

66 data from 40 countries and 34,649 patients, carers and clinicians.

67 experiences of people with dementia, family carers and co-patients (patients sharing the ward with p

68 in the way costs will be distributed between carers and delivery services, changing patterns of servi

69 ated that FCP was highly valued by patients, carers and family physicians.

70 r understanding of how mentoring may benefit carers and has implications for mentor recruitment and t

71 considerable co-ordination work by patients, carers and healthcare professionals.

72 cceptable for people with dementia and their carers and is associated with improved outcomes.

73 Major concerns have been raised by patients, carers and patient groups about the use of precautionary

74 The intervention is cost effective for both carers and patients (67% probability of cost-effectivene

75 utcomes included quality of relationship for carers and people with dementia; both were collected by

76 received, suggested differential impacts for carers and persons with dementia.

77 Patients and their carers and physicians were masked to the treatment alloc

78 tal ill-health has come strongly from users, carers and professionals.

79 l and physical distress to both patients and carers and put a huge burden on health-care systems.

80 d health-related quality of life (SF-12) for carers and quality of life (QoL-AD) for people with deme

81 Acceptability for many carers and some professionals was evident and support fu

82 anagement support had salience for patients, carers and specialist nurses alongside some unique featu

83 dures but on equipping young adults, parents/carers and staff to engage with each other effectively.

84 emain human, so as to nurture service users, carers and staff.

85 view of medical records, and interviews with carers and staff.

86 Support from employers, family/carers and the state/health services and patients' own a

87 of depression and anxiety symptoms in family carers) and cost-effectiveness of a psychological interv

88 Patients (or their carers) and fieldworkers who administered surveys to obt

89 articipants, their study partners (generally carers), and all assessors were masked to treatment assi

90 epresents a significant cost to individuals, carers, and ageing societies.

91 l circumstances and preferences of patients, carers, and clinicians.

92 d mortality, causes distress to patients and carers, and has significant socioeconomic costs in agein

93 bout treatment success by the patient, their carers, and members of the multidisciplinary team are es

94 egotiated between public authorities, family carers, and people with intellectual disabilities themse

95 Participants, carers, and research assistants who collected outcome da

96 from the study statisticians; participants, carers, and study research assistants were aware of allo

97 increasing shortfall in the supply of unpaid carers, and the relative decline of the attractiveness o

98 y issues; lack of support and involvement of carers; and language problems in participants from minor

99 Statistically significant improvements in carer anxiety (p<0.001), depression (p<0.001), quality o

100 timation may result in increased patient and carer anxiety.

101 g that the experiences of patients and their carers are articulated and fed into debates about food a

102 For community-dwelling older adults, family carers are conceptualised as 'conductors'; making strong

103 Patients and carers are experts in their particular circumstances and

104 ageing populations, the numbers of informal carers are likely to increase.

105 teer-provided carer mentoring services where carers are supported by volunteer mentors are one such i

106 Many food-allergic-children/carers are unsure when to use their adrenaline autoinjec

107 welling individuals with dementia, and their carers, around diagnosis and the transition to becoming

108 Malodour is cited by patients and carers as one of the most distressing and socially isola

109 lize the opinions of service users and their carers as well as professionals and focus on those peopl

110 tional distress were significantly higher in carers at each time point than in controls (all p<0.0003

111 s); (3) negotiating self-management support (carer availability and knowledge; balancing needs for sa

112 ng Today; RYCT) for people with dementia and carers, both or neither.

113 rventions that might be useful in mitigating carer burden and distress.

114 people with dementia is distressing, adds to carer burden, and influences decisions to relocate peopl

115 mportant determinants of patients' distress, carer burden, and outcome in dementia; they can also be

116 ic stress, as well as cognitive function and carers' burden.

117 ation of the contribution and role of family carers by health professionals may contribute to improvi

118 We aimed to assess whether reminders sent to carers by text message, mobile phone call, or concomitan

119 Over two thirds of cancer patients and carers came from areas of high socio-economic deprivatio

120 erships will work and guidance on strategies carers can use to support people to self-manage long-ter

121 er support to family carers from experienced carers (Carer Supporter Programme; CSP), group reminisce

122 elopmental features recorded or for whom the carer-child interaction was documented.

123 Our report informs patients, carers, clinicians, providers and commissioners of healt

124 Of these, 25 carers completed structured questionnaires both before a

125 y with food (administered by their parent or carer) containing 150 mg elvitegravir, 150 mg cobicistat

126 Despite this, carers continue to invest considerable effort in maintai

127 someone with dementia is stressful, but how carers cope may be an important determinant of carer psy

128 ressings were applied in both groups so that carers could be kept blind to the type of operation.

129 d coping styles are robustly associated with carer depression and anxiety symptoms and caseness in cr

130 They cause substantial carer distress, but their aetiology remains elusive.

131 ssociated with poor patient life-quality and carer distress.

132 g, and 59 (20%) of 296 were accompanied by a carer during health-care seeking.

133 Twenty nine participants (14 patient and carer dyads, and one carer) took part in semi-structured

134 11 purposively sampled carers to explore how carers experience and perceive the process and benefits

135 and confidence in caring and to explore how carers experience and perceive the process and benefits

136 ients with intellectual disability and their carers experience discrimination or other barriers in ac

137 Even less is known about patient and carer experiences of function and QoL change over time w

138 ttle is known about the impact of mentoring, carers' experiences or the mechanisms by which these sch

139 ributions to understanding the patients' and carers' experiences.

140 d informal open conversations with staff and carers (family members).

141 The opportunity cost of informal care for carers/family members, especially immediately post-diagn

142 ing older adults' hospital admission, family carers find themselves in the role of 'second fiddle', t

143 Spouses are the main carers for PEG patients at home, and patients prefer to

144 ildren still need to be accompanied by their carers for virtual care.

145 These carers frequently develop clinical depression or anxiety

146 following: one-to-one peer support to family carers from experienced carers (Carer Supporter Programm

147 71 (26%) carers from families in the wealthiest quintile knew > o

148 or nurse managers, 34 patients and 28 family carers from three geographically spread case study hospi

149 nd depression scale, and emotional stress of carers (general health questionnaire 28).

150 ct of cancer for patients and their families/carers has grown in recent years, there is little known

151 ontinuous care during development, but adult carers have life expectancies shorter than the developme

152 Carers have the potential to improve patient self-care.

153 disease specific factors that predict poorer carer health outcomes.

154 s, with important consequences for patients, carers, healthcare systems and society.

155 Dyadic (patient and informal carer) heart failure self-care interventions seek to imp

156 phrases for the following concepts: dyadic, carers, heart failure and intervention.

157 life and well-established that patients and carers hold fears relating to opioids, and experience si

158 m some mental health workers and many of the carers; however both groups identified barriers to its i

159 l treatments and services more broadly while carers identified a number of external, practical barrie

160 from trial entry, as recorded by parents and carers in a seizure diary.

161 ork that highlights the role of patients and carers in educating practitioners in the light of earlie

162 The role of patients and carers in education is changing as the value of their ex

163 Involving users/carers in mental health care-planning is central to inte

164 h mild to moderate dementia and their family carers in Sydney, Australia.

165 Carers in the control TAU group were seven times more li

166 Carers in the intervention group had significantly bette

167 otic prescribing guidance; and a leaflet for carers including safety netting advice.

168 A live video link allows subject-carer interaction, projecting a supportive presence into

169 ct of coping style and its role in effective carer interventions.

170 n Interview-Based Impression of Change, plus carer interview did not differ significantly among those

171 n Interview-Based Impression of Change, plus carer interview, which ranges from 1 (marked improvement

172 s included semi-quantitative and qualitative carer interviews, item response modelling (Rasch analysi

173 g to their relative importance documented by carer interviews.

174 e-planning as a meaningful platform for user/carer involvement but revealed philosophical tensions be

175 er care is more beneficial to fitness if the carer is fecund.

176 Having support from an informal carer is important for heart failure patients.

177 Although being a carer is often satisfying, it can be challenging and req

178 ation and partnership between clinicians and carers is critical when supporting people living with a

179 index of suspicion by the mother and health carers is low.

180 ronmental and psychosocial issues (including carer issues) and end-of-life care.

181 Questions focused on the extent to which carers' knowledge of illness, care-seeking outside the h

182 After 6 months, we assessed, for carers, knowledge about stroke, Frenchay activities inde

183 Children/carers (<16 years) with food allergy, trained in adrenal

184 However, the health of young carers (<18 years of age) has been under-researched, esp

185 Carers may be more vulnerable to infectious disease than

186 vention, which substantially improves family-carers' mental health and quality of life, should theref

187 ntoring had a significant positive effect on carer mentees in terms of mental health, quality of life

188 Carer mentoring services can be a valuable form of carer

189 Volunteer-provided carer mentoring services where carers are supported by v

190 START is clinically effective, improving carer mood and anxiety levels for 2 years.

191 Carers (n = 214) of individuals aged between 6 and 25 an

192 alth-care workers (n=15), patients (n=2) and carers (n=2) selected and designed an intervention to im

193 cknowledged that caregiving could affect the carer negatively and cause emotional reactions of burden

194 justing care as needs changed (p=0.009), and carers not feeling listened to (p=0.006).

195 Carers of 415 (41%) of 1014 of these children had sought

196 340 parents or carers of children (169 usual care; 171 intervention) an

197 in areas of high socioeconomic deprivation, carers of children living with disabilities, adolescent

198 Carers of children who were infected with or had been ex

199 50 spousal carers of dementia patients, median age 73 years (IQR 66

200 reminders of scheduled HIV appointments for carers of paediatric patients in low-resource settings c

201 eports of psychological morbidity in spousal carers of patients with dementia.

202 Carers of people with dementia are at increased risk of

203 We included self-identified family carers of people with dementia who had been referred in

204 d and anxiety disorders are common in family carers of people with dementia, and are associated with

205 nality traits for psychological outcomes for carers of people with dementia.

206 served in psychosis from the perspectives of carers of people with mental health problems and mental

207 From 1059 invitation letters sent to carers of potentially eligible children, 84 were randomi

208 Elderly carers of spouses with dementia have increased activatio

209 l autopsies were completed with relatives or carers of the deceased to assess, when possible, the cau

210 ement (or self-management assisted by family carers) of long-term conditions in people with dementia.

211 Family carers often support or substitute self-care activities,

212 The nurses in the service, all patients and carers on the caseload, members of the multi-disciplinar

213 ervice; gender; age; and living with primary carer or not.

214 rses present at the handover, family member, carer or trusted friend (of the patient) allowed to be p

215 professionals, ten burn survivors, and four carers or advocates) from 15 countries to produce the fi

216 has examined psychosocial interventions with carers or families, and the impact of housing, leisure a

217 Studies giving proportion of parents, carers or professionals expressing fear of fever.

218 rom the perspective of people with dementia, carers, or health and care professionals.

219 Residents with dementia, family carers, outcome assessors, statisticians, and health eco

220 or determining the effect on patient and/or carer outcomes.

221 ives of the role and contributions of family carers, particularly when hospital admissions occur as p

222 person and of the caregiver (Quality of the Carer Patient Relationship Scale) and health-related QoL

223 We randomly assigned 242 adult-child (carer-patient) pairs into four groups: text message plus

224 Carers perceived dystonia deterioration in 168/279 (60.2

225 There is consistent evidence that carer personality characteristics influence the progress

226 review included studies if they reported the carers perspective of caregiving - studies that focused

227 pulmonary disease were included only if the carers perspective of the caregiver role could be extrac

228 e dementia are needed to inform patients and carers, plan services and clinical trials, ascertain the

229 Furthermore, the accuracy of their carer predicted future survival, but not weight gain of

230 Family carers provide strong support for many older adults, oft

231 s (aged >/=16 years) registered with primary carer providers in the community (mean 455 508 inhabitan

232 t these coping styles may predict subsequent carer psychological morbidity.

233 rers cope may be an important determinant of carer psychological morbidity.

234 ncy, behavioural and psychological symptoms, carers' psychological wellbeing, or delay in institution

235 o in behavioural and psychological symptoms, carer psychopathology, formal care costs, unpaid caregiv

236 re an important determinant of patients' and carers' quality of life.

237 97 years with a mean age of 78.6 and family carers ranged from 29 to 94 with a mean of 69.1 years.

238 nts included over ninety patients and family carers ranging in age from children to older people with

239 tive tasks, patient-rated questionnaires and carer-rated questionnaires loaded onto separate componen

240 In contrast, carer ratings correlated with atrophy in established net

241 subjective questionnaires, and patient from carer ratings, has important implications for clinical t

242 During the study period, 28 carers received mentoring.

243 able effort in maintaining continuity in the carer relationship to maximise the individual's wellbein

244 However, carers reported better relationships with the people wit

245 We identified 32 papers (>775 patients and carers) reporting help-seeking experiences for at least

246 experience of depression, family members and carers, representing a global network of organizations.

247 e of psychosis as well as family members and carers, representing a global network of organizations.

248 dition specific education, and acknowledging carer role).

249 ary judgments and train them to adopt formal carer roles that promote a more contextualised rights ba

250 Parents and carers should then be offered an informed choice between

251 on groups, focus on the experience of female carers, small sample sizes, and failure to follow-up car

252 ility and activity to the patients and their carers, so the advantages should be discussed.

253 Carer strain and healthcare costs were also recorded.

254 Carer strain did not decrease at 24 weeks (difference, -

255 (20 vs 18, p<0.01, difference 1, [0-1]); the carer strain index (1 vs 3, p<0.05, difference 1 [0 to 2

256 ex, the general health questionnaire 28, the carer strain index, and the London handicap scale.

257 een participants were recruited from a local carer support group.

258 mentoring services can be a valuable form of carer support that falls somewhere between formal and in

259 d treatment perspective is needed, including carer support.

260 rt to family carers from experienced carers (Carer Supporter Programme; CSP), group reminiscence ther

261 but where this can no longer be negotiated, carers take over responsibility for self-management, oft

262 s area under the curve (AUC), were higher in carers than controls at all three assessments (6 months

263 t of clinical encounters for the patient and carer that enhances clinical outcome.

264 tion of it by those with nystagmus and their carers, that the COVID-19 pandemic has had a significant

265 , and the vaccine recipient, their parent or carer, the funder, and investigators responsible for the

266 keholders including service users, patients, carers, the nursing workforce and commissioners.

267 Such knowledge enables staff, patients and carers to 'work together to shape the way things are don

268 ers also need to work with service users and carers to develop and adapt approaches to diagnosis that

269 also undertaken with 11 purposively sampled carers to explore how carers experience and perceive the

270 28/73 (38%) children were judged by their carers to have fully recovered.

271 by medical practitioners and a reluctance in carers to regularly administer the treatment.

272 ice into guideline documents for parents and carers to repeatedly expose their children to a variety

273 Interviews with patients and carers took place in their own homes and focus groups wi

274 cipants (14 patient and carer dyads, and one carer) took part in semi-structured interviews.

275 programme for caregivers (the London Stroke Carers Training Course, LSCTC) on physical and psycholog

276 15 patients, in the last year of life, and 4 carers under the care of community-based specialist pall

277 , quality of life, adverse drug effects, and carer uplift (positive feelings about the care of the di

278 Scores on the DAS patient and carer versions did not significantly differ.

279 We randomly assigned these carers, via an online computer-generated randomisation s

280 Professional and carer views generally concurred in relation to family in

281 In 12 of the interviews, a family carer was also present and made contributions.

282 nality influences the caregiving experience, carer well-being and outcomes such as coping ability, bu

283 determine whether mentoring had an impact on carer wellbeing and confidence in caring.

284 323 patients and 267 carers were followed up.

285 Participants and carers were masked to treatment assignment.

286 Participants and carers were not masked.

287 173 carers were randomly assigned to START and 87 to TAU.

288 Patients and carers were recruited through the national Scottish Moto

289 Fifty two children/carers were recruited.

290 eceiving anti-VEGF treatment and 100 patient carers were recruited.

291 People with dementia and their family carers were the participants.

292 Depth interviews revealed that carers were very positive about mentoring and highlighte

293 ver 108.4h, 41 different staff (35 nurses, 6 carers) were observed to administer medications to 823 r

294 both, was sought from 80 patients (or their carers) who had entered a phase I randomised, placebo-co

295 nalysis was by intention to treat, excluding carers with data missing at both 12 and 24 months.

296 .09-7.35); and severe beatings by parents or carers with domestic violence (3.58; 2.06-6.20), rape (2

297 diseases, however, can provide patients and carers with the chance of early intervention, better dis

298 participation of practitioners, patients and carers, with each group contributing to the education an

299 activities and improved quality of life for carers, with no significant effects on patients.

300 Nurses and family carers working together, and greater appreciation of the