ライフサイエンスコーパス: carer

1 antidepressants, in another trial, or had no carer.

2 l would then depend on a single, short-lived carer.

3 opinions and another referring to their main carer.

4 health questionnaire between the patient or carer.

5 , having undergone radiotherapy, and being a carer.

6 isms to understand how mentoring may benefit carers.

7 y is an important psychological resource for carers.

8 r 4, 2009, to June 8, 2011, we recruited 260 carers.

9 ructured interviews with patients and family carers.

10 aximum variation sample of 35 patients and 9 carers.

11 oints of view of psychiatrists, patients and carers.

12 stressful, complex, long-term challenges to carers.

13 s, which were completed by the participants' carers.

14 t system, which masked both participants and carers.

15 g patients and levels of burden in patients' carers.

16 d number of falls, or on emotional stress of carers.

17 family support on stroke patients and their carers.

18 ontribute to the difficulties experienced by carers.

19 evaluating the impact of FCP in patients and carers.

20 istic fear of fever expressed by parents and carers.

21 therefore be more acceptable to patients and carers.

22 y of care for people with dementia and their carers.

23 nd validity of the DAS in patients and their carers.

24 ncern for people with food allergy and their carers.

25 re for people with dementia and their family carers.

26 negotiated responsibility with patients and carers.

27 ntia live at home supported mainly by family carers.

28 tentially cost-effective means of supporting carers.

29 tive to the short life expectancies of adult carers: a lone mother's offspring are doomed if she dies

30 Education of patients and their carers about the risks associated with, and management o

31 Family carers act flexibly to provide continuity, support and t

32 d a reduced quality of life for patients and carers, adding to health costs and extending disease bur

33 Nurses and carers administering medications.

34 533 male and 641 female cancer patients and carers aged 4-95 (mean 62) years, who accessed the welfa

35 ers have a devastating impact on patient and carer alike.

36 with dementia, and are associated with poor carer and care recipient outcomes.

37 mmunicating and connecting with the patient, Carer and family engagement, Building up a picture of th

38 mentia care affects the mental health of the carer and identify interventions that might be useful in

39 START is cost effective with respect to carer and patient outcomes, and National Institute for H

40 raits are associated with and influence both carer and patient outcomes.

41 AIM: To identify patient, carer and professional views on the concept of self-mana

42 Eight (16%) of 50 carers and 26 (39%) of 67 controls had a four-fold incre

43 83 patients with ALS, 75 carers and 83 sex-matched, age-matched and education-mat

44 es to influenza vaccination differed between carers and a control group, and the relation of the anti

45 In parents/carers and adults, this has significant impact on qualit

46 with over 400 service users, practitioners, carers and advocates from ten European countries at diff

47 Furthermore, as patients, carers and clinical nurse specialists worked together to

48 le with dementia is a priority for patients, carers and clinicians and a policy priority.

49 data from 40 countries and 34,649 patients, carers and clinicians.

50 experiences of people with dementia, family carers and co-patients (patients sharing the ward with p

51 in the way costs will be distributed between carers and delivery services, changing patterns of servi

52 ated that FCP was highly valued by patients, carers and family physicians.

53 r understanding of how mentoring may benefit carers and has implications for mentor recruitment and t

54 Major concerns have been raised by patients, carers and patient groups about the use of precautionary

55 The intervention is cost effective for both carers and patients (67% probability of cost-effectivene

56 utcomes included quality of relationship for carers and people with dementia; both were collected by

57 received, suggested differential impacts for carers and persons with dementia.

58 Patients and their carers and physicians were masked to the treatment alloc

59 tal ill-health has come strongly from users, carers and professionals.

60 l and physical distress to both patients and carers and put a huge burden on health-care systems.

61 d health-related quality of life (SF-12) for carers and quality of life (QoL-AD) for people with deme

62 Acceptability for many carers and some professionals was evident and support fu

63 anagement support had salience for patients, carers and specialist nurses alongside some unique featu

64 dures but on equipping young adults, parents/carers and staff to engage with each other effectively.

65 emain human, so as to nurture service users, carers and staff.

66 view of medical records, and interviews with carers and staff.

67 Support from employers, family/carers and the state/health services and patients' own a

68 of depression and anxiety symptoms in family carers) and cost-effectiveness of a psychological interv

69 Patients (or their carers) and fieldworkers who administered surveys to obt

70 articipants, their study partners (generally carers), and all assessors were masked to treatment assi

71 epresents a significant cost to individuals, carers, and ageing societies.

72 egotiated between public authorities, family carers, and people with intellectual disabilities themse

73 Participants, carers, and research assistants who collected outcome da

74 y issues; lack of support and involvement of carers; and language problems in participants from minor

75 Statistically significant improvements in carer anxiety (p<0.001), depression (p<0.001), quality o

76 timation may result in increased patient and carer anxiety.

77 For community-dwelling older adults, family carers are conceptualised as 'conductors'; making strong

78 Patients and carers are experts in their particular circumstances and

79 ageing populations, the numbers of informal carers are likely to increase.

80 teer-provided carer mentoring services where carers are supported by volunteer mentors are one such i

81 Many food-allergic-children/carers are unsure when to use their adrenaline autoinjec

82 welling individuals with dementia, and their carers, around diagnosis and the transition to becoming

83 Malodour is cited by patients and carers as one of the most distressing and socially isola

84 lize the opinions of service users and their carers as well as professionals and focus on those peopl

85 tional distress were significantly higher in carers at each time point than in controls (all p<0.0003

86 ng Today; RYCT) for people with dementia and carers, both or neither.

87 rventions that might be useful in mitigating carer burden and distress.

88 people with dementia is distressing, adds to carer burden, and influences decisions to relocate peopl

89 mportant determinants of patients' distress, carer burden, and outcome in dementia; they can also be

90 ic stress, as well as cognitive function and carers' burden.

91 ation of the contribution and role of family carers by health professionals may contribute to improvi

92 We aimed to assess whether reminders sent to carers by text message, mobile phone call, or concomitan

93 Over two thirds of cancer patients and carers came from areas of high socio-economic deprivatio

94 er support to family carers from experienced carers (Carer Supporter Programme; CSP), group reminisce

95 elopmental features recorded or for whom the carer-child interaction was documented.

96 Of these, 25 carers completed structured questionnaires both before a

97 y with food (administered by their parent or carer) containing 150 mg elvitegravir, 150 mg cobicistat

98 Despite this, carers continue to invest considerable effort in maintai

99 someone with dementia is stressful, but how carers cope may be an important determinant of carer psy

100 ressings were applied in both groups so that carers could be kept blind to the type of operation.

101 d coping styles are robustly associated with carer depression and anxiety symptoms and caseness in cr

102 They cause substantial carer distress, but their aetiology remains elusive.

103 ssociated with poor patient life-quality and carer distress.

104 Twenty nine participants (14 patient and carer dyads, and one carer) took part in semi-structured

105 and confidence in caring and to explore how carers experience and perceive the process and benefits

106 11 purposively sampled carers to explore how carers experience and perceive the process and benefits

107 ients with intellectual disability and their carers experience discrimination or other barriers in ac

108 ttle is known about the impact of mentoring, carers' experiences or the mechanisms by which these sch

109 ributions to understanding the patients' and carers' experiences.

110 d informal open conversations with staff and carers (family members).

111 The opportunity cost of informal care for carers/family members, especially immediately post-diagn

112 ing older adults' hospital admission, family carers find themselves in the role of 'second fiddle', t

113 Spouses are the main carers for PEG patients at home, and patients prefer to

114 These carers frequently develop clinical depression or anxiety

115 following: one-to-one peer support to family carers from experienced carers (Carer Supporter Programm

116 71 (26%) carers from families in the wealthiest quintile knew > o

117 nd depression scale, and emotional stress of carers (general health questionnaire 28).

118 ct of cancer for patients and their families/carers has grown in recent years, there is little known

119 ontinuous care during development, but adult carers have life expectancies shorter than the developme

120 Carers have the potential to improve patient self-care.

121 disease specific factors that predict poorer carer health outcomes.

122 Dyadic (patient and informal carer) heart failure self-care interventions seek to imp

123 phrases for the following concepts: dyadic, carers, heart failure and intervention.

124 life and well-established that patients and carers hold fears relating to opioids, and experience si

125 m some mental health workers and many of the carers; however both groups identified barriers to its i

126 l treatments and services more broadly while carers identified a number of external, practical barrie

127 from trial entry, as recorded by parents and carers in a seizure diary.

128 ork that highlights the role of patients and carers in educating practitioners in the light of earlie

129 The role of patients and carers in education is changing as the value of their ex

130 Involving users/carers in mental health care-planning is central to inte

131 Carers in the control TAU group were seven times more li

132 Carers in the intervention group had significantly bette

133 ct of coping style and its role in effective carer interventions.

134 n Interview-Based Impression of Change, plus carer interview did not differ significantly among those

135 n Interview-Based Impression of Change, plus carer interview, which ranges from 1 (marked improvement

136 s included semi-quantitative and qualitative carer interviews, item response modelling (Rasch analysi

137 g to their relative importance documented by carer interviews.

138 e-planning as a meaningful platform for user/carer involvement but revealed philosophical tensions be

139 Having support from an informal carer is important for heart failure patients.

140 Although being a carer is often satisfying, it can be challenging and req

141 index of suspicion by the mother and health carers is low.

142 ronmental and psychosocial issues (including carer issues) and end-of-life care.

143 Questions focused on the extent to which carers' knowledge of illness, care-seeking outside the h

144 After 6 months, we assessed, for carers, knowledge about stroke, Frenchay activities inde

145 Children/carers (<16 years) with food allergy, trained in adrenal

146 Carers may be more vulnerable to infectious disease than

147 vention, which substantially improves family-carers' mental health and quality of life, should theref

148 ntoring had a significant positive effect on carer mentees in terms of mental health, quality of life

149 Carer mentoring services can be a valuable form of carer

150 Volunteer-provided carer mentoring services where carers are supported by v

151 START is clinically effective, improving carer mood and anxiety levels for 2 years.

152 cknowledged that caregiving could affect the carer negatively and cause emotional reactions of burden

153 justing care as needs changed (p=0.009), and carers not feeling listened to (p=0.006).

154 Carers of 415 (41%) of 1014 of these children had sought

155 Carers of children who were infected with or had been ex

156 50 spousal carers of dementia patients, median age 73 years (IQR 66

157 reminders of scheduled HIV appointments for carers of paediatric patients in low-resource settings c

158 eports of psychological morbidity in spousal carers of patients with dementia.

159 Carers of people with dementia are at increased risk of

160 We included self-identified family carers of people with dementia who had been referred in

161 d and anxiety disorders are common in family carers of people with dementia, and are associated with

162 nality traits for psychological outcomes for carers of people with dementia.

163 served in psychosis from the perspectives of carers of people with mental health problems and mental

164 Elderly carers of spouses with dementia have increased activatio

165 l autopsies were completed with relatives or carers of the deceased to assess, when possible, the cau

166 The nurses in the service, all patients and carers on the caseload, members of the multi-disciplinar

167 has examined psychosocial interventions with carers or families, and the impact of housing, leisure a

168 Studies giving proportion of parents, carers or professionals expressing fear of fever.

169 or determining the effect on patient and/or carer outcomes.

170 ives of the role and contributions of family carers, particularly when hospital admissions occur as p

171 person and of the caregiver (Quality of the Carer Patient Relationship Scale) and health-related QoL

172 We randomly assigned 242 adult-child (carer-patient) pairs into four groups: text message plus

173 Carers perceived dystonia deterioration in 168/279 (60.2

174 There is consistent evidence that carer personality characteristics influence the progress

175 review included studies if they reported the carers perspective of caregiving - studies that focused

176 pulmonary disease were included only if the carers perspective of the caregiver role could be extrac

177 e dementia are needed to inform patients and carers, plan services and clinical trials, ascertain the

178 Family carers provide strong support for many older adults, oft

179 s (aged >/=16 years) registered with primary carer providers in the community (mean 455 508 inhabitan

180 t these coping styles may predict subsequent carer psychological morbidity.

181 rers cope may be an important determinant of carer psychological morbidity.

182 ncy, behavioural and psychological symptoms, carers' psychological wellbeing, or delay in institution

183 o in behavioural and psychological symptoms, carer psychopathology, formal care costs, unpaid caregiv

184 re an important determinant of patients' and carers' quality of life.

185 nts included over ninety patients and family carers ranging in age from children to older people with

186 tive tasks, patient-rated questionnaires and carer-rated questionnaires loaded onto separate componen

187 In contrast, carer ratings correlated with atrophy in established net

188 subjective questionnaires, and patient from carer ratings, has important implications for clinical t

189 During the study period, 28 carers received mentoring.

190 able effort in maintaining continuity in the carer relationship to maximise the individual's wellbein

191 However, carers reported better relationships with the people wit

192 We identified 32 papers (>775 patients and carers) reporting help-seeking experiences for at least

193 ary judgments and train them to adopt formal carer roles that promote a more contextualised rights ba

194 Parents and carers should then be offered an informed choice between

195 on groups, focus on the experience of female carers, small sample sizes, and failure to follow-up car

196 ility and activity to the patients and their carers, so the advantages should be discussed.

197 Carer strain and healthcare costs were also recorded.

198 Carer strain did not decrease at 24 weeks (difference, -

199 (20 vs 18, p<0.01, difference 1, [0-1]); the carer strain index (1 vs 3, p<0.05, difference 1 [0 to 2

200 ex, the general health questionnaire 28, the carer strain index, and the London handicap scale.

201 een participants were recruited from a local carer support group.

202 mentoring services can be a valuable form of carer support that falls somewhere between formal and in

203 rt to family carers from experienced carers (Carer Supporter Programme; CSP), group reminiscence ther

204 s area under the curve (AUC), were higher in carers than controls at all three assessments (6 months

205 t of clinical encounters for the patient and carer that enhances clinical outcome.

206 , and the vaccine recipient, their parent or carer, the funder, and investigators responsible for the

207 keholders including service users, patients, carers, the nursing workforce and commissioners.

208 Such knowledge enables staff, patients and carers to 'work together to shape the way things are don

209 ers also need to work with service users and carers to develop and adapt approaches to diagnosis that

210 also undertaken with 11 purposively sampled carers to explore how carers experience and perceive the

211 28/73 (38%) children were judged by their carers to have fully recovered.

212 by medical practitioners and a reluctance in carers to regularly administer the treatment.

213 Interviews with patients and carers took place in their own homes and focus groups wi

214 cipants (14 patient and carer dyads, and one carer) took part in semi-structured interviews.

215 programme for caregivers (the London Stroke Carers Training Course, LSCTC) on physical and psycholog

216 15 patients, in the last year of life, and 4 carers under the care of community-based specialist pall

217 , quality of life, adverse drug effects, and carer uplift (positive feelings about the care of the di

218 Scores on the DAS patient and carer versions did not significantly differ.

219 We randomly assigned these carers, via an online computer-generated randomisation s

220 Professional and carer views generally concurred in relation to family in

221 In 12 of the interviews, a family carer was also present and made contributions.

222 nality influences the caregiving experience, carer well-being and outcomes such as coping ability, bu

223 determine whether mentoring had an impact on carer wellbeing and confidence in caring.

224 323 patients and 267 carers were followed up.

225 Participants and carers were masked to treatment assignment.

226 Participants and carers were not masked.

227 173 carers were randomly assigned to START and 87 to TAU.

228 Patients and carers were recruited through the national Scottish Moto

229 Fifty two children/carers were recruited.

230 eceiving anti-VEGF treatment and 100 patient carers were recruited.

231 People with dementia and their family carers were the participants.

232 Depth interviews revealed that carers were very positive about mentoring and highlighte

233 ver 108.4h, 41 different staff (35 nurses, 6 carers) were observed to administer medications to 823 r

234 both, was sought from 80 patients (or their carers) who had entered a phase I randomised, placebo-co

235 nalysis was by intention to treat, excluding carers with data missing at both 12 and 24 months.

236 .09-7.35); and severe beatings by parents or carers with domestic violence (3.58; 2.06-6.20), rape (2

237 participation of practitioners, patients and carers, with each group contributing to the education an

238 activities and improved quality of life for carers, with no significant effects on patients.

239 Nurses and family carers working together, and greater appreciation of the